5. AZ & FL These warmer clinic locations do not work with this disease for initial visits.
Why did they wait until I got there to make a plan? I'd spent 3 months getting all records to them so they could get me into all the specialist during my stay. Instead, they waited until I arrived which gave me appointments until March 23. We couldn't stay that long and had to go to all the departments and sit and wait for hours/days to see if they might be able to fit me in. That resulted in exhaustion, being there from 7am-7pm, and NOT seeing the specialist who might have had some experience with this rare blood disease and getting proper follow up tests done, ugh! Consequently, the internist in charge of our case was unable fit me in the last day to do the final review. We'll have to wait for him to send his notes and reports in the next 6-8 weeks.
*The optometrist did NOT find optic neuropathy!
*Blood tests indicate that my vital organs are holding up well!
*They burnt a pre-cancerous spot off my ear!