Meet Dr. Lee Altenberg and visit his page. During his radio interview he shares his Dad's journey with Cryoglobulinemia. At one time it was the ONLY place to find helpful CRYO information.
http://dynamics.org/cryo/Cryocrit.html
We created the Cryoglobulinemia Vasculitis Organization with Rochelle Roberts Ray. She found us through our website DianeDike.org. We were immediate kindred spirits and had so much in common. Both our mothers had Multiple Myeloma, both have passed on now. Rochelle was the first CRYO patient I'd meet in person when her family stayed with us here in COLORADO.
We worked hard with dedicated volunteers to bring you and the world the helpful and informative website.
Facebook Support Group
CVO became the world's first organization for Support, Research, Advocacy, Awareness, Education, Encouragement and HELP for CRYO patients and those who love them!
In the beginning, I connected with the Vasculitis Foundation to let them know that according to my research CRYO was a form of vasculitis not yet listed on their website. I joined their team and it was one of their leaders that recommended me to the Mystery Diagnosis TV show that helped to put CRYOGLOBULINEMIA on the map.
Watch the Mystery Diagnosis TV Show:
Today the journey continues with partnerships and efforts to make a difference because we are BETTER TOGETHER!
Thank you for caring and sharing!
ALL AWARENESS BANNERS and RADIO SHOW LINKS are posted to be SHARED as we CELEBRATE SEPTEMBER - our CRYO AWARENESS MONTH!!!!
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